WEB-BASED RESOURCE GUIDE
For Families and Providers of Children and Youth with
Special Health Care Needs
This web-based Resource Guide was created for families of
children with special health care needs, and for individuals working with these
families. Please note that the content of the pages you are about to visit are
not authorized or under the control of the Rhode Island Technical Assistance
Project (RITAP) or Rhode Island College (RIC).
It was created by: Denise Achin (Rhode Island Technical
Assistance Project at Rhode Island College), Jane Azie (Empowered Families
CEDARR Family Center), Dalida Frias (About Families CEDARR Family Center), Ana
Gomes (Solutions CEDARR
Family Center),
Colleen Polselli (Rhode Island Department of Health), Danielle Proulx (About Families CEDARR
Family Center),
Donald Testa (Families
First CEDARR
Family Center),
Carol Whitman (Department of Children, Youth and Families) and Catherine
Willingham (Department of Human Services).
There are several options available to navigate the Guide:
(1) Enter "Control F" to initiate a search, or
(2) Click "Edit" on the control bar and click "Find on this page", or
(3) Scroll down the Table of Contents and click on
the topic you would like to navigate to
This Guide will be updated periodically, to request any
changes, including corrections or new resources, please send an e-mail message
to: amoniz@ric.edu
Please include the direct URL for the resource being added.
Thank-you!
We hope you find the Guide useful,
The CEDARR Web-based Resource Workgroup
TABLE OF CONTENTS
Adoption. 2
Assistive
Technology/Durable Medical Equipment (DME) 3
Child
Abuse & Domestic Violence. 5
Cultural and Linguistic Competency
Dental
Care. 5
Department
of Children, Youth and Families. 6
Department
of Health. 9
Diagnosis
Specific. 10
General 10
Attention
Deficit Disorder 11
Autism
Spectrum Disorders. 11
Blind/Visual
Impairments. 13
Brain
Injury. 13
Cerebral
Palsy. 14
Developmental
Disabilities. 14
Down
Syndrome. 15
Epilepsy. 15
Hearing. 15
Lyme
Disease. 18
Learning
Disability. 18
Multiple
Sclerosis. 18
Muscular
Dystrophy. 19
Mental
Health/Illness. 19
Tourette’
Syndrome. 20
Early
Care and Education (Child Care) 20
Early
Childhood Resources. 21
Energy/Heating Assistance. 24
Evaluation,
Assessment, Diagnosis and Therapeutic Providers. 24
Family
Support, Training, and Advocacy Resources. 26
Food
and Nutrition Resources. 30
Housing. 31
Income
Support 32
Interpreting
Services. 33
Legal
Assistance/Advocacy. 33
Medical
Assistance. 34
Mental
Health. 35
Pediatric
Facilities. 37
Rehabilitation
Facilities. 38
Rhode
Island State Government 39
Secondary
Transition Resources. 40
Service
Coordination. 42
Sexual
Abuse/Assault Agencies and Resources. 43
Special
Education Resource. 43
Therapeutic
Horseback Riding: 44
Therapeutic
Recreation. 45
Transportation. 47
NON-WEB
COMMUNITY RESOURCES. 48
Accessible
Playgrounds. 48
Churches
with social services/assistance throughout the State. 49
State Supported
- Adoption and Foster Care Preparation
and Support
Recruits, trains and assesses
families who are interested in providing a home for a child in state care.
www.dcyf.ri.gov
Provides family
recruitment and child matching under contract to DCYF.
www.adoptionri.org
Responsible for adoption subsidies,
provides short-term services to families after adoption is finalized, and
provides adult adoptees with information in accordance with RI law.
www.dcyf.ri.gov
Community resources
- Adoption and Foster Care services:
http://www.caseyfamilyservices.org
- 2007
Rhode Island Resource Guide to Technology for People with Disabilities:
This document lists agencies and their contact information, including the
Sargent Rehabilitation Center, in Rhode Island that provide technology
support or services for people with disabilities.
http://www.ric.edu/uap/publications/ResGuideTech.pdf
- All Tech: ALLTech identifies
technology solutions to the educational, daily living, communication, and
workplace challenges experienced by people of all abilities and ages.
www.alltech-tsi.org
- Apria Healthcare: Apria Healthcare
is America's
provider of integrated home healthcare products and services. We are
committed to full-service homecare solutions that give maximum
independence to our 1.2 million patients leading nationwide.
http://www.apria.com/home/
- Assistive Technology Access
Partnership (ATAP ): ATAP, the Rhode Island Assistive Technology Act
Project (P.L. 105-394) is designed as a statewide partnership of
organizations and agencies, each with a targeted assistive technology
focus, working together providing information and improving access to
assistive technology for individuals with disabilities.
http://www.atap.ri.gov/
- Assistive Technology Access Project
(ATAP): provides links to AT providers in the State of RI:
http://www.atap.state.ri.us/atappartners.htm
- ATAP Resource
Center at the East Bay
Collaborative: provides information and training to families and
school districts on AT.
http://www.ebecri.org/custom/assistive_technology.html
- Center for Communication Disorders
www.childrenhospital.org/clinicalservices
- Claflin Equipment Sales & Service:
Our mission at Claflin Equipment Sales & Service is to be a unique
resource for medical equipment and its related services. Our state of the
art web site, ClaflinEquip.com,
allows customers to access and research over 10,000 medical
equipment products and to place and track orders online 24 hours a day 7
days a week.
http://www.claflinequip.com/
- Lincare: The mission of Lincare is
to set standards of excellence for providing respiratory care, infusion
therapy and medical equipment to patients in the home. Our company's
success, which is characterized by responsiveness and clinical excellence,
has been founded on the dedication of our professionals to quality care.
Physicians, care givers and patients trust Lincare to provide the quality
care they expect and deserve.
http://www.lincare.com/
- Meeting Street
Center: link to its assistive
technology, sensory integration and audiology and version link:
http://www.meetingstreet.org/matriarch/MultiPiecePage.asp_Q_PageID_E_31_A_PageName_E_specialtyservicesoverview
- People Actively Reaching Independence (PARI): PARI was incorporated in
1980 as a "consumer-directed" Independent Living
Center. Our staff
works with people with any kind of disability to identify goals and provide
training, equipment, advocacy, and counseling to help them to achieve
their goals. Whether the consumer is seeking medical resources, new ways
of performing activities of daily life, transportation, housing, or ways
of becoming involved in the community, the PARI Independent
Living Center
is the individual's professional resource for reaching independence
http://www.pari-ilc.org/
- Regional ADA
and IT Technical
Assistance Center:
Adaptive Environments promotes design that works for everyone across the
spectrum of ability and age and enhances human experience. We provide easy
access to information and guidance about the civil rights laws and codes
that provide a bedrock of accessibility in the US. We provide education and
consultation about strategies, precedents and best practices that go
beyond legal requirements to design places, things, communication and
policy that integrate solutions to the reality of human diversity.
www.adaptenv.org
- Sensational Child Inc.: The
Sensational Child offers an array of services, within one multi-faceted
center, to improve the quality of life for children with disabilities and
their families.The Sensational Child is a source for therapy tools and
equipment, books devoted to special needs, quality developmental toys,
items used in sensory integration therapy, as well as adaptive equipment
for better organizational, daily living and life skills.
http://www.sensationalchild.org/
- South County Surgical Supply: South County
Surgical Supply, part of South County Hospital Healthcare System, is a
full-service retail provider of medical equipment, offering sales and rental
of a comprehensive line of the latest in home healthcare supplies and
durable medical equipment
http://www.schospital.com/surgical_supply.cfm?mid=1&sid=2&thid=4&level=3
- TechACCESS: TechACCESS of RI is a
private, not for profit resource center that serves people with
disabilities who are interested in assistive technology.
http://www.techaccess-ri.org/
- Vanguard Home Medical: With local
market knowledge, customer sensitivity and consistent quality, Vanguard
Home Medical Equipment is dedicated to delivering services to patients
that enhance their quality of life. We are committed to exceeding industry
standards and our customers' expectations by constantly looking for ways
to improve the way we deliver patient care. This commitment to quality has
helped define Vanguard Home Medical Equipment as the leading provider for
healthcare services in Rhode
Island.
http://www.airproductshealthcare.com/locations/vanguard.htm
- Department of Children, Youth, and
Families
www.dcyf.ri.gov
www.child-advocate.ri.gov
- Prevent Child Abuse Rhode Island
www.preventchildabuse-ri.org
- RI Children’s Prevention &
Protective Services
www.satrc.org
-
National Center for Cultural Competence (NCCC)
The mission of the NCCC is to increase the capacity of health and mental health programs to design, implement, and evaluate culturally and linguistically competent service delivery systems. The NCCC web site gives you access to the following cultural and linguistic competency resources: frameworks and models; guiding principles; policies; self-assessment tools; and links to other resources. Clicking on "Links" gives you access to the following: resources for families; government resources; university centers, foundations and nonprofit organizations; accessibility on the web...
http://www11.georgetown.edu/research/gucchd/nccc/index.html
- The National Center for Culturally Responsive Educational Systems (NCCRESt)
NCCRESt works with state and local school systems to address ingrained practices that contribute to perpetuating disparities in access to learning by providing technical assistance and professional development to schools and their communities, including resources for early